Recommended Specialists

Each patient with ZTTK is different, and while some may not need to see all of the suggested specialists, there are some cases that will, if only to rule in or out typical complications of ZTTK. Some may need to be seen regularly throughout life for proper monitoring. Periodically check in with these specialists even though your initial evaluation is negative or shows no concerns. Things can change over time. Continued evaluations are encouraged.

  • Genetics

  • Pediatrics

  • Neurology

  • Gastrointerology

  • Ear Nose & Throat

  • Dental

  • Pulmonology

  • Cardiology

  • Immunology

  • Opthalmology (specializing in CVI)

  • Urology

  • Endocrinology

  • Hematology

  • Physicial Medicine & Rehabilitation

  • Physical Therapy

  • Occupational Therapy

  • Speech Therapy

  • Feeding Therapy

  • Dietician