Welcome to the Official Website of the ZTTK SON-Shine Foundation.

We are so happy you are here! You will find information about ZTTK Syndrome and the ZTTK SON-Shine Foundation, as well as pictures and stories of our precious SON-Shines on this site!

“We have seen so many powerful, moving moments in the lives of ZTTK patients and families within our family group, and I am so excited to see the ways that we will continue to share these powerful and moving moments with the world on this website an…

We have seen so many powerful, moving moments in the lives of ZTTK patients and families within our family group, and I am so excited to see the ways that we will continue to share these powerful and moving moments with the world on this website and through our foundation.


— Tara, Co-Founder of the ZTTK SON-Shine Foundation